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Showing posts from August, 2018
I wrote this on my Facebook page in response to -Whats on your mind? Well I just loved the programme yesterday The Big Life Fix- Inventing the Impossible.(BBC 2, 20.00pm) The man had some elements of hearing loss (very similar to Hyperacusis) as there were too many noises- JUST LIKE ME. It was intriguing to see what they would come up to resolve his issue.  WOW! JUST WOW!- the device so he could hear the whole conversation and read what was being said and for him to be able to join in the conversation.  Is there a spare device as that's just what I could use in certain situations,it would help me to get a job,  be more included in conversations and drown out the background noises.  I did find that the hat wouldn't work for me as I cannot cope with the mobile phone alerts. So if there is anybody out there who would like to do the same help me find a solution to living with Hyperacusis please get in touch.  Better still can I be on the programme? Well done I just so lov
So its been a while now since I've been on here- apologies to all! I must confess I wanted to write but have had many challenges and here are just a few; I've been put onto Universal Credit and this  means I now get, almost £200.00 less benefit per month.  I still have the fighting spirit to get a job though and this can only be achieved if the behaviours towards disabled applicants changes. I would consider working from home. In one recent telephone conversation I was asked why don't I have hearing aids? I was stumped by the question but really I should have responded by asking why they don't have hearing aids as (1) had they heard and understood my explanation of what its like to have Hyperacusis - the opposite to deafness (2) if they had they would have understood that a person with Hyperacusis hearing is like being in the middle of an orchestra and trying to have  a conversation with someone that is 20 foot away being expected to hear and understand  then give